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BIO Patient & Health Advocacy DisplayMonday, May 7, 9:30 am – 5:00 pm
As of 2/12/07, the following companies will be participating at the BIO Patient and Health Advocacy Display:Alliance for Aging Research The Alliance for Aging Research is the nation's leading nonprofit organization dedicated to advancing scientific and medical discoveries to maximize healthy aging, independence and quality of life for older Americans. The Alliance advocates for greater national investment in research and new technologies to benefit older Americans and the nation. Alpha-1 Advocacy Alliance The Alpha-1 Advocacy Alliance is a membership 501 c(3) organization serving the educational and emotional needs of the Alpha-1 patient community, their families and the medical support teams. All services are free so that patients, families and medical communities can understand their diagnosis and truly live with Alpha-1. All members of the Board of Directors are patients or parents of Alpa-1 patients. Alzheimer’s Drug Discovery Foundation The Alzheimer's Drug Discovery Foundation is a public charity whose mission is to accelerate drug discovery research for Alzheimer's disease and related dementias through venture philanthropy. Since 1998, we have awarded $25.5 million for 165 research programs and conferences worldwide in academia and biotechnology. American Association for Cancer Research Since 1907, AACR has fostered groundbreaking investigations in cancer throughout the world by providing scientists with the most important forums for the presentation of their research. Through its outstanding scientific meetings, scholarly journals, and a host of other research programs, AACR plays a pivotal role in facilitating scientific advancement and progress against cancer. American Autoimmune Related Diseases Association American Autoimmune Related Diseases Association (AARDA) is a national nonprofit voluntary health organization. It is the only organization dedicated to promoting a collaborative research effort to find a cure for all autoimmune diseases which afflict 50 million Americans.. AARDA works both to increase the public's knowledge and awareness of autoimmunity and to support research into the cause and cure of autoimmune disease. American Heart Association Since 1924, the AHA has helped people of all ages and ethnicities from the ravages of heart disease and stroke. These diseases, the nation's No. 1 and No. 3 killers, claim more than 910,000 Americans each year. The association is dedicated to increasing research, professional and public education, advocacy, and community service programs so people across American can live stronger, longer lives. American Liver Foundation The American Liver Foundation (ALF) is the nation's leading nonprofit organization promoting liver health and disease prevention. ALF provides research, education and advocacy for those affected by liver-related diseases, including hepatitis. In partnership with our sister organization, the American Association for the Study of Liver Disease (AASLD), ALF is the nation's largest source of grants for liver disease research after the U.S. government. Arthritis Foundation The Arthritis Foundation is the leading health organization addressing the needs of some 46 million Americans living with arthritis, the nation’s number-one cause of disability. The foundation helps individuals take control of arthritis by providing public health education; pursuing public policy and legislation; conducting evidence-based programs to improve the quality of life for those living with arthritis; and funding arthritis research. Children’s Brain Tumor Foundation Children's Brain Tumor Foundation (CBTF) provides help and hope every day to families and children fighting the deadliest childhood disease. CBTF funds research, provides support and information services, offers a Parent 2 Parents Network, and Survivor Programs. Learn more at Toll-free 866-228-4673 or www.cbtf.org Celiac Disease Center at Columbia University The Celiac Disease Center at Columbia University is the only center in the US that provides comprehensive medical care for adult and pediatric patients with celiac disease. The Center's research is directed toward celiac disease- clinical epidemiology, and mechanisms of Celiac disease and patient and physician education. The center is diagnosing and treating more than 2400 patients annually from around the world. Children’s Cause for Cancer Advocacy The Children's Cause for Cancer Advocacy (CCCA) works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of childhood cancer survivors. CCCA educates the public and policymakers about the need for new therapies for childhood cancer and for post-treatment follow-up care for survivors. Children’s Tumor Foundation The Children's Tumor Foundation funds neurofibromatosis research and clinical care initiatives, with a focus on seed-funding early stage programs. The Foundation has long-standing relationships with NIH and DOD. EURORDIS, Rare Diseases Europe Rare Diseases Europe (EURORDIS) is a non-governmental patient-driven alliance of patient organizations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe. It is the voice of 30 million patients affected by rare diseases throughout Europe. Faster Cures/The Center for Accelerating Medical Solutions Faster Cures/The Center for Accelerating Medical Solutions is dedicated to saving lives by saving time. Our mission is to identify and implement global solutions to accelerate the process of discovery and clinical development of new therapies for the treatment of deadly and debilitating diseases. FRAXA Research Foundation FRAXA's mission is to find effective treatments and a cure for all children and adults with Fragile X, the most common inherited cause of mental impairment and the most common known genetic cause of autism. FRAXA is a parent run organization which directly funds promising biomedical research on Fragile X. Forum for Collaborative HIV Research The Forum for Collaborative HIV Research is an independent public-private partnership whose mission is to facilitate discussion on emerging issues in HIV clinical research and the transfer of research results into care. Genetic Alliance Genetic Alliance provides leadership and infrastructure development for more than 600 disease-specific advocacy organizations. Genetic alliance increases the capacity of these organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. Huntington's Disease Society of America The Huntington's Disease Society of America (HDSA) provides support and provides support and services to persons with Huntington's disease (HD) and their family members. The Society has as its primary purpose to fund research that will lead to improved treatments and, ultimately, to finding the cure for HD. Until that time, HDSA has undertaken the leadership role in providing care for HD patients and their families and to educating the general public and medical professionals about the disease. Interamerican College of Physicians and Surgeons ICPS is incorporated in the District of Columbia as a tax-exempt, not-for-profit (501-C-3) organization. It is a powerful professional network that provides information and support to physicians, faculty, researchers, health institutions, government agencies, community0based organizations, and medical societies in the United States, Spain and Latin America. The goals of ICPS are to: improve the health of the Hispanic community, reduce incidence of preventable diseases, improve educational and leadership opportunities for Hispanic physicians, encourage Hispanics to pursue careers in the healthcare field. ICPS conducts numerous programs to improve the medical education of Hispanic physicians and the Health of the Hispanic community. Juvenile Diabetes Research Foundation International The Juvenile Diabetes Research Foundation International is the world's largest charitable funder of research to find cures for diabetes and its complications. JDRF is driven to be a leading catalyst for development science that delivers therapeutics to improve the lives of people with diabetes in the near term, ultimately leading to a cure. Lung Cancer Alliance Lung Cancer Alliance (LCA) is the only national non-profit organization providing patient support and advocacy exclusive to lung cancer community. LCA's mission is to lead the movement to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness, and changing health policy. Lupus Foundation of America, Inc. The Lupus Foundation of America is the nation's leading nonprofit organization dedicated to finding the causes and care for lupus. The LFA and its network of 300 chapters and support groups conducts programs of research, education, public awareness, and patient services for individuals with lupus, their families, and health professionals. Minority Physicians Research Alliance Minority Physicians Research Alliance (MPRA) is a Site Management Organization (SMO) headquartered in Jacksonville, Florida, established with the goal to increase the participation of minority groups in clinical research. MPRA intends to make a major impact on the drug development timeline by accelerating the process of recruiting and enrolling minority patients into clinical trials. The focus is to help major pharmaceutical and biotechnical companies reduce the time, cost and risk of bringing targeted new drug treatments and devices to market. Currently, MPRA has a satellite office in Tallahassee, FL and intends to grow by extending its network to offices in central and south Florida. In addition to clinical trials, MPRA is experiences at conducting health outcomes research for private health care entities, as well as disease management and educational intervention programs. Muscular Dystrophy Association MDA is a voluntary health agency combating neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA has over 200 offices across the country, sponsors 230 hospital-affiliated clinics and supports nearly 400 research projects. National Medical Association The National Medical Association is a 111 year non-profit organization that represents the interests of African-American physicians. It is committed to the elimination of health disparities, promotion of health and wellness, and sustaining physician viability. Project IMPACT, (Increase Minority Participation & Awareness of Clinical Trials) works to educate and increase minority participation in all aspects of biomedical research and clinical trials National Multiple Sclerosis Society Founded in 1946, the National Multiple Sclerosis Society's mission is to end the devastating effects of multiple sclerosis (MS). We do this by supporting MS research throughout the world, offering services for people with MS, providing professional education programs, and by advocating on behalf of people with MS. National Osteoporosis Foundation The National Osteoporosis Foundation (NOF) is the nation's leading voluntary health organization solely dedicated to osteoporosis and bone health. It is the vision of NOF to make bone health a reality and a lifelong priority for all individuals. NOF achieves its mission through programs of awareness, public and health professional education, advocacy and research. National Organization for Rare Disorders (NORD) The National Organization for Rare Disorders (NORD) is a well respected and recognized non government non profit agency which gives a voice to the national and international rare disease community. NORD dedicates its work to assist individuals, organizations, healthcare professionals and companies affected by or interested in orphan diseases through programs of education, research advocacy and service. Visit www.rarediseases.org PDtrials Pdtrials is an initiative of the major Parkinson's disease voluntary groups to accelerate the development of new treatments for the disease. A major effort of the campaign will be to increase participation of the Parkinson's community in clinical trials through a national public awareness campaign. This campaign is being led by the Parkinson's Disease Foundation, in collaboration with the following groups: American Parkinson Disease Association, Inc; Parkinson's Action Network; The Parkinson Alliance; The Michael J. Fox Foundation for Parkinson's Research; National Parkinson Foundation and WE MOVE. The campaign is advised by the National Institute of Neurological Disorders and Stroke (national Institutes of Health), the Parkinson Study Group, the Parkinson Pipeline Project and the Parkinson's Institute. Prostate Health Education Network, Inc. PHEN's primary mission is to increase prostate health education and awareness among the men at highest risk for prostate cancer in the United States, African Americans. Saving lives through early detection and eliminating the African American prostate cancer disparity is PHEN's education and awareness goal. RetireSafe/ and the Senior Center for Health and Security RetireSafe (www.retiresafe.org), a grassroots advocacy organizations representing 400,000 senior supporters across America, supports the research needed to provide new therapies and cures. RetireSafe believes a free-market system will continue to enhance our lives. RetireSafe's Senior Center for Health and Security (www.seniorforcures.org) educates the public regarding issues important to older Americans. Scleroderma Foundation The Scleroderma Foundation is a national nonprofit organization dedicated to serving those with scleroderma and their loved ones. Our national office in Massachusetts and 21 chapters and 175 support groups throughout the country accomplish this by carrying out our three-fold mission of Support, Education and Research The Global Alliance For TB Drug Development (TB Alliance) The Global Alliance for TB Drug Development (TB Alliance) is a not-for-profit, product development partnership accelerating the discovery and development of new, faster and better novel drugs to fight tuberculosis. Working with public and private partners worldwide, the TB Alliance is leading the development of the most comprehensive portfolio of TB drug candidates in history, and is committed to ensuring that approved new regimens are affordable, accessible and adopted. The Leukemia and Lymphoma Society The Leukemia & Lymphoma Society is the world's largest voluntary health organization to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma and myeloma, and improve the quality of life of patients and their families. The Society funds research in both academic and private sector areas. The Men’s Health Network The Men's Health Network (MHN) was created to address the growing men's health crisis. The goals of MHN are as follows: To save men's lives by reducing the premature mortality of men and boys. To increase the physical and mental health of men so that they can life fuller and happier lives. To significantly reduce the cycles of violence and addiction that afflict so many men.
The Michael J. Fox Foundation for Parkinson’s Research The Michael J. Fox Foundation is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda. The Foundation focuses on gaps and roadblocks in the translational pipeline, funding both academic and industry partners with ideas that have high potential to accelerate research programs The Myelodysplastic Syndromes (MDS) Foundation, Inc. The MDS Foundation is an international organization devoted to patient support, research, treatment, and education in the myelodysplasic syndromes (MDS). The foundation is based on the premise that international cooperation will accelerate the process leading to the control and cure of MDS. The foundation, through our current network of 111 Centers of Excellence worldwide, provides referrals for patients, disseminates formation on research and treatments, provides educational programs for physicians and patients, and supplies funding/oversight for international studies. Vital Options International Vital Options International (VOI) is a cancer communications organization that interfaces directly with the physician, research, institutional, pharmaceutical, biotech, patient and advocacy communities. VOI's mission is to facilitate a global cancer dialogue through various distribution channels using multimedia technology. As the patient has become a strategic player within industry, enhancing the effectiveness of core messaging between industry and the medical consumer about drug development and clinical trials is a fundamental objective, especially given the constraints of new compliance deadlines. WomenHeart: the National Coalition for Women with Heart Disease WomenHeart is the nation's only patient advocacy organization serving 8,000,000 American women living with heart disease. It aims to increase their quality of life and healthcare, and to advocate on their behalf. Our goal is a heart disease-free America.
Please contact Michael Losow with questions regarding the BIO Patient & Health Advocacy Display. |
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